My name is Kerry Bird I am 52 years of age. I am struggling day by day with my health.
I was diagnosed with Sjögren’s syndrome many years ago.
I take Plaquenil 200mg. I have been taking it for a good 10 years.
4 years ago I was diagnosed with hypothyroidism.
I take Levothyroxine 125mg.
It took two years for my blood tests to normalize. However, I have not felt any better since I was diagnosed.
I have severe Fibromyalgia to the point that I am struggling with the pain.
My head and neck hurt constantly.
I have constant episodes, as I call them, of feeling extremely cold which change within minutes to feeling extremely hot and flushed which makes me feel panicky.
I have dizzy spells, which give me the feeling of having vertigo. The room spinning makes me feel sick.
I am now getting very bad lower back pain which continues in to my hips. When sitting, I struggle to get up and it is very painful.
I have other very strange symptoms that occur randomly – itching all over and very dry skin.
I am now getting circulation problems and the feeling of not getting enough oxygen to my brain as my head feels foggy and I have memory lapses.
I have very low blood pressure – just 70 over 90.
My body feels like it is failing.
I would be so thankful just to be pain-free and be able to take on the simplest of tasks without struggling.
I have tried no end of alternative remedies and purchased a SAD lamp, water filters even cutting out toothpaste with fluoride.
My GP checks my blood but always comes back saying it is normal as my thyroxine medication is at the correct dosage of 125mg.
I haven't ever seen an endocrinologist doctor as my GP has always said there is no need to. However, I am now at the point where I am going to insist on seeing one privately.
I cannot go on suffering the way I do.
I do believe the thyroxine is not helping me.
Many a time I have wished I would die.
I get very depressed from being in constant pain and becoming frustrated that I do not have the energy or strength to tackle the easiest of tasks.
Just cleaning my teeth or having a shower exhausts me.
I used to be a healthy, active independent person until in 1992 I started to get ulcers on my eyes and I was told to use viscose tears eye drops. Then it was downhill from there.
A private rheumatologist diagnosed me in 2002 with having Sjögren’s syndrome, connective tissue disorder and abnormal blood vessels.
It took 10 years after many tests to get that diagnosis as several GPs said it was Chronic Fatigue Syndrome. In those days, doctors more or less were saying it was all in the mind.
Then in 2009 I was diagnosed with hypothyroidism.
However, since being on the meds levothyroxine 125mg I have gone downhill, am in constant pain and am experiencing very random and unusual symptoms.
One symptom that really baffles me is how randomly just before I go off to sleep it feels like my bed is shaking.
My body feels just like it is packing up.
The GPs I have seen use statements like “it is all I can do to keep you alive” or just put it down to my clinical conditions.
Since seeing all the information concerning ThyroidChange and Thyroid International and Thyroid UK, I have realized there is something very wrong in the way doctors just rely on their textbooks and do not follow up on their training.
People should be treated as individuals based on their symptoms, but doctors rely too much on medical textbooks.
I notice that Levothyroxine contains lactose and glucose. It is possible that I could be intolerant to the ingredients.
I cannot go on much longer the way I feel.
Every day is such a struggle.
Just to be pain-free and to be able to handle the simplest of tasks would be wonderful so that I could get through life and enjoy each day.
I filled in my medical history on the Thyroid UK Health Unlocked site to see all my symptoms written down. The list is long.
I fear the problem with clinical autoimmune diseases is that the symptoms can mimic so many other illnesses. Nevertheless, people know their own bodies and doctors should listen.
It doesn't bear thinking about.
How many people many years ago were placed in mental homes for being labeled mentally ill or having dementia when they may have only had hypothyroidism.
If I had the choice, I would sooner take a natural remedy rather than a synthetic substance that has chemicals in it or go to seek help from an alternative therapist than any doctor that will not listen to the patient because their medical training is guided by a medical text book.
The list of symptoms I get can be very random and very extreme I have listed them below:
Crawling under skin
Crushing foot pain
Difficulty with speech
Dry, flaky Scalp
Eyebrow loss (outer third)
Face hot flushes
Fatigue and tiredness
Head Hair Loss
Loss of libido
Numbness in fingers
Numbness in toes
Smelly Urine (Urine odor)
Tenderness of thyroid