Our Other Advocacy Efforts
ThyroidChange seeks to improve the health of thyroid patients who are left debilitated by symptoms. We believe timely and necessary change is happening! Therefore, we continue to organize efforts designed to increase thyroid disease awareness and enforce the need for change in current diagnostic and treatment methods. The following actions have been taken:
Click here to view other thyroid initiatives that we support.
American Thyroid Association 84th Annual Meeting Letter - In response to the announcement of the ATA's 84th Annual Meeting and to the recently published guidelines for the treatment of hypothyroidism, ThyroidChange sent this letter to the ATA's Board of Directors and authors of the 2014 hypothyroidism treatment guidelines. The letter highlights four critical questions that our thyroid community wishes to have answered. ThyroidChange aims for collaboration with the ATA and we hope that our combined perspectives will inspire change to reduce the number of patients who are left suffering by current standards.
Thyroid Patients’ Petition for Better Care - Endocrinologists: Patients with Thyroid Dysfunction Demand Better Care is a patient-petition organized by ThyroidChange, a grass-roots, patient effort to assemble thyroid patients, organizations, groups, blogs and physicians into a global community with a unified voice and a shared understanding that the current guidelines regarding the diagnosis and treatment of thyroid disease leave too many patients symptomatic.
ThyroidChange Letter to Congressmen/Policy Makers - Mail your local congressmen and policy makers using our pre-written letter! Simply find your congressmen contact information (links provided) and then, “copy and paste” this letter into an email message or into the message field on their website. If you are outside the U.S., we encourage you to modify the text; address it to your political leader and reference your own country's process. Thank you for taking a minute to change thyroid care!
ThryoidChange "We Need Change" Video - Professional medical organizations worldwide have created treatment guidelines that are leaving many thyroid patients undiagnosed or under-treated. We need your help to facilitate greater awareness for better care among thyroid patients. Simply copy and paste the URL address for this video to the links provided or on social media. We need hundreds of people to circulate this message to the following sources to make our voice heard!
AACE/ATA Social Media Protest – ThyroidChange encourages thyroid patients worldwide to continue to share their thoughts about the American Thyroid Association (ATA) and the American Association of Clinical Endocrinologists (AACE) 2012 Treatment Guidelines for Hypothyroidism on these organizations' Facebook pages. This grass-roots protest has inspired hundreds of patients to speak out on the Facebook pages of these organizations, sharing their stories, and demanding that these mandating organizations set new standards for thyroid disease care. To view some of the patient comments, please visit this AACE Facebook post and this ATA Facebook post. Keep posting! Your story is evidence of thyroid patient suffering and the need for change in the current guidelines.
ThyroidChange Letter to RELIS Midt-Norge (Norway) - RELIS Midt-Norge is a government organization in Norway dedicated to providing information on various drug treatments. A physician, who was caring for a patient with a history of thyroidectomy and was currently prescribed Erfa by his general practitioner, was seeking further information on the use of natural thyroid extract in their online forum. The response by RELIS cites ThyroidChange. Unfortunately, the response does not accurately portray the our position on natural thyroid extract which prompted this letter.
ThyroidChange Letter to SELF Magazine Regarding Article on Thyroid Cancer - Were you upset and frustrated when you read SELF magazine's article on thyroid cancer entitled, "Thyroid Cancer: What Are The Risks?". We would like YOUR voice to be heard. Simply "cut" and "paste" this letter into an email addressed to the Editor-in-Chief of SELF Magazine: Lucy@self.com or send her a tweet: @LucyDanziger. Thank you for your continued support! Please view SELF magazine's response and ThyroidChange's response.
Protest Letter to Novo Nordisk Fonden - Are you frustrated by the belief that lingering symptoms of thyroid disease is due to mental illness? Novo Nordisk Fonden (Denmark) chose to honor Anthony Weetman with The H.C. Jacobaeus Lecture Prize 2012. Weetman posited in his 2006 paper that patients who are symptomatic with optimal TSH ranges have functional somatoform disorders. ThyroidChange does not agree with this award recipient. Simply “COPY and PASTE” this letter and e-mail it to Novo Nordisk Fonden at email@example.com before they award Weetman the H.C. Jacobaeus Lecture Prize 2012 on November 29th.
Letter to the American Association of Clinical Endocrinologists (AACE) and the American Thyroid Association (ATA)
In response to the disappointing AACE/ATA new 2012 guidelines for the treatment of hypothyroidism, ThyroidChange sent a letter to the AACE/ATA commenting on the following items from their new guidelines: 1) perception of current research 2) associated symptoms 3) diagnostic testing 4) treatment options and 5) patient experience.
Thank You Letter to the American Thyroid Association (Spring Symposium 2013) - In response to the American Thyroid Association’s announcement of their Spring 2013 Symposium and Research Summit entitled, “Treatment of Hypothyroidism: Exploring the Possibilities.” This symposium will explore the viability of treatment options beyond levothyroxine sodium. We are expressing not only our gratitude, but also, our aspirations for what will be discussed, and determined.
Letter to Drs. Oz and Roizen - ThyroidChange submitted this letter to Drs. Oz & Roizen. It is in response to the Washington Examiner editorial they co-authored regarding the importance of the thyroid gland which conveys inaccurate information regarding both assessment and treatment options. We hope that in the near future they dedicate a television show correcting the misinformation that is promoted on such a common affliction.
Watch the patient video here! We need your help to facilitate greater awareness for better care among thyroid patients. Simply copy and paste the URL address for this video to the links provided or on social media. We need hundreds of people to circulate this message to the following sources to make our voice heard!